We are Genadi and Teodora, parents of Bozhana and Marko.

Bozhana is our first child. She is healthy, active and independent.

Marko, our second kid, was born with a rare genetic disease called LAMA2 CMD. Despite the heavy diagnosis, Marko is a smart and cheerful child.

We have learned to live and be happy with the diagnosis. We created LAMA2 Bulgaria to share our experience in LAMA2 care.

Learn more (in 🇧🇬)


Muscular Dystrophy type LAMA2 (LAMA2 CMD), also known as Merosin-deficient Congenital Muscular Dystrophy type 1А is a rare genetic disease affecting the production of the protein Laminin-211, which is needed for normal muscle development. Affected children are born with weak muscle tone (hypotonia), cannot hold their head well and rarely walk.

Learn more (in 🇧🇬)

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