We are Genadi and Teodora, parents of Bozhana and Marko.
Bozhana is our first child. She is healthy, active and independent.
Marko, our second kid, was born with a rare genetic disease called LAMA2 CMD. Despite the heavy diagnosis, Marko is a smart and cheerful child.
We have learned to live and be happy with the diagnosis. We created LAMA2 Bulgaria to share our experience in LAMA2 care.
Muscular Dystrophy type LAMA2 (LAMA2 CMD), also known as Merosin-deficient Congenital Muscular Dystrophy type 1А is a rare genetic disease affecting the production of the protein Laminin-211, which is needed for normal muscle development. Affected children are born with weak muscle tone (hypotonia), cannot hold their head well and rarely walk.
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